Links & Resources

 MS Blogs/Newsletters/Forums

 

MS Views and NewsMS Views and News / Stu's Views & MS News 
Provides education, information & resources for those affected by Multiple Sclerosis
www.msviewsandnews.org

 

Active MSersActiveMSers: Multiple Sclerosis and Motivation
Is designed to help, motivate, & inspire those with multiple sclerosis to stay as active as possible - physically, intellectually and socially - regardless of physical limitations. 

        

                 MS Fitness Challenge
      Encouraging People To Overcome Multiple Sclerosis Through Fitness and Nutrition
                 http://msfitnesschallenge.com/

 

Multiple Sclerosis.netMS Conversations (blog-MSAA) 
"Best Blog 20/20 - Healthline
(formally was MultipleSclerosis.net)
Register to stay informed on all the latest MS News, participate in forums..

                MultipleSclerosis.net

                Multiple Sclerosis News Today

         Momentum Magazine

         International Journal of MS Care


Other MS Bloggers:


Articles/Useful Links

My MS Manager, the first-of-its kind mobile phone app
   created by the Multiple Sclerosis Association of America (MSAA) to
   help patients with MS better manage their disease

MS & Exercising:

   *Exercising with MS: The Complete Guide (NEW!!)
       ActiveMSers – Dave Bexfield

   *A Do-It-Yourself Massage Plan for Head-to-Toe Tension Relief
     https://bit.ly/3Cq58UJ

   *Program Charts/How-To's
      *Coordination/Balance Exercises (Click here- PDF)
      *Stretching Exercises (Click here-PDF)
      *Lower Extremity Exercises (Click here-PDF)
      *Home Exercise Program (Click here-PDF)

    *Tips to Manage Your Muscles
      http://www.webmd.com/multiple-sclerosis/live-thrive-16/feel-best/muscles

    *Spasticity--What it is & what to do
      https
://multiplesclerosis.net/symptoms/stiffness-involuntary-muscle-spasms/   

    *Stretching for People wth MS
      https://www.nationalmssociety.org/NationalMSSociety/media/MSNationalFiles/Brochures/Brochure-Stretching-for-People-with-MS.pdf

*“The Medication Map” (NMSS Momentum Magazine--Winter 2013/2014)
Article discusses the FDA approved Disease ModifyingTreatments

*Expanded Disability Status Scale (EDSS)
http://bit.ly/1pmf0Ge

*"Multiple Sclerosis by the Numbers: Facts, Statistics, and You"
http://bit.ly/SbztzP

*How Do I Find A Doctor?
https://multiplesclerosis.net/living-with-ms/find-doctor-help/?utm_source=weekly&utm_medium=email&utm_campaign=160314&uuid=2eb9557d12477a97ad5977ad9fd2db5b 

*"Bowel Changes in MS"
 https://www.ms.org.au/attachments/bowel-handouts-merged-2015.aspx

*"What is a Neurogenic Bowel?"
 https://www.saintlukeskc.org/health-library/neurogenic-bowel

*"How to Treat a Fecal Impaction
https://www.medicalnewstoday.com/articles/322150

*“Controlling the Muscle Spasms of MS”
http://www.msviews.org/msviewsandnews4/index.php/2012-05-28-00-15-54/2012-05-28-00-18-16/632

*"How temperature affects people with Multiple Sclerosis"
http://brainblogger.com/2014/09/13/how-temperature-affects-people-with-multiple-sclerosis/

*"How to Boost Your Immune System"
http://bit.ly/19huu2H

*“The Power of Sleep”
http://time.com/3326565/the-power-of-sleep/

*The Complete Guide to Insomnia and How You an Manage It  **NEW**
https://howtosleep.co.uk/guides/the-complete-guide-to-insomnia
 For many people, the impact on sleep quality caused by COVID-19 and daily life disruptions may find help in this in-depth resource. (Note: sleeping   prescriptions are discouraged. However, they are often necessary as an interim, permanent, or last resort with MS/other chronic conditions.)

*"Health Benefits of Sleeping And How Far They Reach"
https://www.thesleepjudge.com/health-benefits-of-sleeping/

*Solutions for Cooling Every Body
http://www.polarproducts.com/polarshop/pc/home.asp

* Yoga positions (click here- PDF)

 

Other Resources

Americans with Disabilities Act/Legal/Employment

Associations: Multiple Sclerosis

  • National Multiple Sclerosis Society (NMSS)
    www.nationalmssociety.org
    1-800-344-4867
     
  • Multiple Sclerosis Association of America (MSAA)
    www.mymsaa.org
    1-(800) 532-7667
     
  • Multiple Sclerosis Foundation (MSF)
    www.msfocus.org
    1- 888-MSFOCUS
     
  • Multiple Sclerosis International Federation
    http://www.msif.org/en/

  • The Consortium of Multiple Sclerosis Centers
    The leading educational and professional development organization for MS healthcare professionals.
    http://www.mscare.org/
     
  • AIMS (Advances In Multiple Sclerosis)Created by the Consortium of Multiple Sclerosis Centers (CMSC), Nurse Practitioner Alternatives (NPA), and The France Foundation. Provides high-quality, up-to-date information on advances in the treatment of MS.
     www.cmeAIMS.org  
     
  • iConquorMS - a Patient-Powered Research Network (PPRN)
    https://www.iconquerms.org/

  • MSology is a free information service offering the latest research news on multiple sclerosis (MS), tips on living
    with the disease, and practical advice to help in making decisions.
    http://msology.ca/     

 

Associations: Other

  • Myelin Repair Foundation
    info@myelinrepair.org
    http://www.myelinrepair.org
    Tel: 408-871-2410

  • Well Spouse Association
    info@wellspouse.org
    http://www.wellspouse.org
    Tel: 800-838-0879 732-577-8899
     
  • Caregiving Resource Center--Information, tools and tips for caregivers (AARP)
    http://bit.ly/1yFBnMV

  • American Association on Health and Disability
    The mission of AAHD is to advance health promotion and wellness initiatives for children and adults with disabilities. AAHD accomplishes its mission through advocacy, education, public awareness, and research efforts at the federal, state, and community levels.
    http://www.aahd.us/ 

 

Business Ideas For People With Disabilities  

         *Helpful educational resources and/or business ideas for people with disabilities  

 

Doctors: Background Check (Profiles, Credentials, Ratings, Reviews)

 

Healthcare/Insurance Information

 
General Healthcare/Mental Health/Alternative Medicine/Pain Management

 


Medical Information
  • MedlinePlus is the National Institutes of Health's Web site for patients and their families and friends. Produced by the National Library of Medicine, information is given about diseases, conditions, etc. in language easily understood. MedlinePlus offers reliable, up-to-date health information, free. 
    www.nlm.nih.gov/medlineplus 

 

Social Security Disability Benefits/Medicare

To obtain information about Social Security Disability, you can call your local social security office, or go online at www.socialsecurity.gov.
Another very informative site for this subject is www.NMSS.org (Type “social security disability” in the search bar.)   

Suicide Hotline

The U.S. National Suicide Prevention Lifeline at 800-273-TALK (8255), is a free, 24/7 service that can provide suicidal          persons or those around them with support, information and resources. (Source: National Institute of Mental Health.)

 

Support

Treatments (DMT) 

  • Disease Modifying Therapies (DMT's) and Other Medications
    https://www.nationalmssociety.org/Treating-MS/Medications#section-1  

         
  • Stem Cells in MS
    https://www.nationalmssociety.org/Research/Research-News-Progress/Stem-Cells-in-MS

  • MSAA’s website and publications offer information about stem cell therapy (SCT) for the experimental treatment of MS. Details on some of the newer studies on SCT are featured in the recent editions of MSAA’s MS Research Update, and may be found by going to the Publications section of MSAA’s website at https://mymsaa.org/ms-information/publications/, and scroll down to select one of the two most recent editions of the MS Research Update.

  • DVC Stem offers cell infusion and other treatments for MS at their Medical Center in the Cayman Islands. Protocols are IRB approved, and the cells come from regulated, U.S. based, FDA compliant laboratories. Treatment consists of a two-day period including the IV transplant of 300M cord tissue-derived MSCs, as well as a variety of therapies designed to aid stem cell activation and potency (chiro, physiotherapy, acupuncture, lymphatic massage, etc).
    https://www.dvcstem.com/