Links & Resources

  • Articles/Useful Links

 

MS Views and NewsMS Views and News / Stu's Views & MS News 
Provides education, information & resources for those affected by Multiple Sclerosis
www.msviewsandnews.org

 

Active MSersActiveMSers: Multiple Sclerosis and Motivation
Is designed to help, motivate, & inspire those with multiple sclerosis to stay as active as possible - physically, intellectually and socially - regardless of physical limitations. 

 

Multiple Sclerosis.netMS Conversations (blog-MSAA) 
"Best Blog 20/20 - Healthline
(formally was MultipleSclerosis.net)
Register to stay informed on all the latest MS News, participate in forums...

 

Other MS Bloggers:


My MS Manager, the first-of-its kind mobile phone app
   created by the Multiple Sclerosis Association of America (MSAA) to
   help patients with MS better manage their disease

MS & Exercising:

   *Exercising with MS: The Complete Guide (NEW!!)
       ActiveMSers – Dave Bexfield

   *Program Charts/How-To's
      *Coordination/Balance Exercises (Click here- PDF)
      *Stretching Exercises (Click here-PDF)
      *Lower Extremity Exercises (Click here-PDF)
      *Home Exercise Program (Click here-PDF)

    *Tips to Manage Your Muscles
      http://www.webmd.com/multiple-sclerosis/live-thrive-16/feel-best/muscles

    *Spasticity--What it is & what to do
      https

://multiplesclerosis.net/symptoms/stiffness-involuntary-muscle-spasms/   *MS Fitness Challenge--Encouraging People To Overcome Multiple Sclerosis
      Through Fitness and Nutrition
       http://msfitnesschallenge.com/

*“The Medication Map” (NMSS Momentum Magazine--Winter 2013/2014)
Article discusses the FDA approved Disease ModifyingTreatments

*Cures Act May Speed Approval of Stem Cell Therapies for MS, Other Diseases
  
http://sumo.ly/tpp8 

*Expanded Disability Status Scale (EDSS)
http://bit.ly/1pmf0Ge

*"Multiple Sclerosis by the Numbers: Facts, Statistics, and You"
http://bit.ly/SbztzP

*Nearly 1 Million Americans Have Multiple Sclerosis, NMSS Prevalence Study Finds
 https://multiplesclerosisnewstoday.com/2017/11/20/nearly-1-million-americans-have-multiple-sclerosis-nmss-prevalence-study-finds/

*How Do I Find A Doctor? Help Is Here! (excellent article!)
https://multiplesclerosis.net/living-with-ms/find-doctor-help/?utm_source=weekly&utm_medium=email&utm_campaign=160314&uuid=2eb9557d12477a97ad5977ad9fd2db5b 

*"Bowel Changes in MS"
 https://www.ms.org.au/attachments/bowel-handouts-merged-2015.aspx

*"What is a Neurogenic Bowel?"
 https://www.saintlukeskc.org/health-library/neurogenic-bowel

*"How to Treat a Fecal Impaction
https://www.medicalnewstoday.com/articles/322150

*“Controlling the Muscle Spasms of MS”
http://www.msviews.org/msviewsandnews4/index.php/2012-05-28-00-15-54/2012-05-28-00-18-16/632

*"How temperature affects people with Multiple Sclerosis"
http://brainblogger.com/2014/09/13/how-temperature-affects-people-with-multiple-sclerosis/

*"How to Boost Your Immune System"
http://bit.ly/19huu2H

*“The Power of Sleep”
http://time.com/3326565/the-power-of-sleep/

*"Health Benefits of Sleeping And How Far They Reach"
https://www.thesleepjudge.com/health-benefits-of-sleeping/

*Solutions for Cooling Every Body
http://www.polarproducts.com/polarshop/pc/home.asp

*What is the real impact of MS in America?

* Yoga positions (click here- PDF)

 

Other Resources

Americans with Disabilities Act/Legal/Employment

Associations: Multiple Sclerosis

  • National Multiple Sclerosis Society (NMSS)
    www.nationalmssociety.org
    1-800-344-4867
     
  • Multiple Sclerosis Association of America (MSAA)
    www.mymsaa.org
    1-(800) 532-7667
     
  • Multiple Sclerosis Foundation (MSF)
    www.msfocus.org
    1- 888-MSFOCUS
     
  • Multiple Sclerosis International Federation
    http://www.msif.org/en/

  • The Consortium of Multiple Sclerosis Centers
    The leading educational and professional development organization for MS healthcare professionals.
    http://www.mscare.org/
     
  • AIMS (Advances In Multiple Sclerosis)Created by the Consortium of Multiple Sclerosis Centers (CMSC), Nurse Practitioner Alternatives (NPA), and The France Foundation. Provides high-quality, up-to-date information on advances in the treatment of MS.
     www.cmeAIMS.org  
     
  • iConquorMS - a Patient-Powered Research Network (PPRN)
    https://www.iconquerms.org/

  • MSology is a free information service offering the latest research news on multiple sclerosis (MS), tips on living
    with the disease, and practical advice to help in making decisions.
    http://msology.ca/     

 

Associations: Other

 

Business Ideas For People With Disabilities  

         *Helpful educational resources and/or business ideas for people with disabilities  

 

Doctors: Background Check (Profiles, Credentials, Ratings, Reviews)

 

Healthcare/Insurance Information

 
General Healthcare/Alternative Medicine/Pain Management
 

Medical Information
  • MedlinePlus is the National Institutes of Health's Web site for patients and their families and friends. Produced by the National Library of Medicine, information is given about diseases, conditions, etc. in language easily understood. MedlinePlus offers reliable, up-to-date health information, free. 
    www.nlm.nih.gov/medlineplus 

 

Social Security Disability Benefits/Medicare

To obtain information about Social Security Disability, you can call your local social security office, or go online at www.socialsecurity.gov.
Another very informative site for this subject is www.NMSS.org (Type “social security disability” in the search bar.)   

Suicide Hotline

The U.S. National Suicide Prevention Lifeline at 800-273-TALK (8255), is a free, 24/7 service that can provide suicidal          persons or those around them with support, information and resources. (Source: National Institute of Mental Health.)

 

Support

Treatments (DMT) 


DVC Stem offers the highest quality products and the latest available treatments for MS at their world-class Medical Center in the Cayman      Islands. Protocols are IRB approved, and the cells come from regulated, U.S. based, FDA compliant laboratories. 

          Treatment consists of a two-day period including the IV transplant of 300M cord tissue-derived MSCs, as well as a variety of therapies 
          designed to aid stem cell activation and potency (chiro, physiotherapy, acupuncture, lymphatic massage, etc).
          https://www.dvcstem.com/

  • Pharmas       

For Copaxone (Teva), your co-pay assistance source is Shared Solutions at:
https://www.copaxone.com/shared-solutions or call toll-free: 1-800-887-8100

 

For Avonex, Tysabri, and Tecfidera (Biogen idec), see MSActiveSource at:
http://www.msactivesource.com/ or call toll-free: 1-800-456-2255


For Betaseron (Bayer), see the BETAPLUS® patient support program at:
http://www.betaseron.com/explore-betaseron or call toll-free: 1-800-788-1467


For Gilenya (Novartis), see Patient Assistance Now at:
http://www.patientassistancenow.com/ or call toll-free: 1-800-245-5356


For Aubagio, (Genzyme) see the One to One program at:
https://www.aubagio.com/ms-one-to-one or call toll-free: 1?855?676?6326


For Rebif (Merck Serono), see MS Lifelines at:
http://www.rebif.com/rebif-financial-services
or call toll-free: 1-877-447-3243

 

*Pharma co-pay programs are for commercially-insured patients only. If you have Medicare or Medicaid, call the same numbers to apply to charity organizations that will fund government-insured patients. Either way, they’ll get you covered.