MS Blogs/Newsletters/Forums

 

MS Views and News / Stu's Views & MS News 
Provides education, information & resources for those affected by Multiple Sclerosis
www.msviewsandnews.org

 

ActiveMSers: Multiple Sclerosis and Motivation
Is designed to help, motivate, & inspire those with multiple sclerosis to stay as active as possible - physically, intellectually and socially - regardless of physical limitations. 

        

                 MS Fitness Challenge
      Encouraging People To Overcome Multiple Sclerosis Through Fitness and Nutrition
                 http://msfitnesschallenge.com/

 

MS Conversations (blog-MSAA) 
"Best Blog 20/20 - Healthline (formally was MultipleSclerosis.net)
Register to stay informed on all the latest MS News, participate in forums..

                MultipleSclerosis.net  

                A community for people affected by Multiple Sclerosis. Learn, share, and connect with peers and healthcare professionals.

 

                Multiple Sclerosis News Today

         Momentum Magazine

         International Journal of MS Care

        The Boster Center for Multiple Sclerosis

Podcasts

      FUMS  Podcast

    Twins coast to coast: Mirror Image MS Madness

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Articles/Useful Links

  NEW:

        **How to Calm Anxiety (When You're Freaking Out)

           Excellent Platform!

 **How to Share a Diagnosis with Family and Friends

           Excellent article! Insights about whom to tell and when.  
 **Multiple Sclerosis (MS) Causes and Risk Factors

            Healthline  June 2021

Brain Lesions: What to Know

Diseases That Mimic MS: Your Guide

Self-Care Strategies: Creating a Self-Care Menu

Setting Healthy Boundaries as a Form of Self-Care

Navigating Multiple Sclerosis with You and Your Family
Update on Infusion Therapies for MS

MS and Infections (video)

MS Expert Predicts Myelin Repair Therapy Will Emerge Within Next 10 Years

Making RRMS Treatment Decisions: A Doctor Discussion Guide

Marijuana for Multiple Sclerosis

         Stem Cell Treatment for Multiple Sclerosis

        Scientists develop promising vaccine method against recurrent UTI

                      --------------------------

My MS Manager™, the first-of-its kind mobile phone app
   created by the Multiple Sclerosis Association of America (MSAA) to
   help patients with MS better manage their disease

MS & Exercising:

   *Exercising with MS: The Complete Guide (NEW!!)
       ActiveMSers – Dave Bexfield

   *A Do-It-Yourself Massage Plan for Head-to-Toe Tension Relief
     https://bit.ly/3Cq58UJ

   *Program Charts/How-To's
      *Coordination/Balance Exercises (Click here- PDF)
      *Stretching Exercises (Click here-PDF)
      *Lower Extremity Exercises (Click here-PDF)
      *Home Exercise Program (Click here-PDF)

    *Tips to Manage Your Muscles
      http://www.webmd.com/multiple-sclerosis/live-thrive-16/feel-best/muscles

    *Spasticity--What it is & what to do
      https://multiplesclerosis.net/symptoms/stiffness-involuntary-muscle-spasms/   

    *Stretching for People wth MS
      https://www.nationalmssociety.org/NationalMSSociety/media/MSNationalFiles/Brochures/Brochure-Stretching-for-People-with-MS.pdf

*“The Medication Map” (NMSS Momentum Magazine--Winter 2013/2014)
Article discusses the FDA approved Disease ModifyingTreatments

*Expanded Disability Status Scale (EDSS)
http://bit.ly/1pmf0Ge

*"Multiple Sclerosis by the Numbers: Facts, Statistics, and You"
http://bit.ly/SbztzP

*How Do I Find A Doctor?
https://multiplesclerosis.net/living-with-ms/find-doctor-help/?utm_source=weekly&utm_medium=email&utm_campaign=160314&uuid=2eb9557d12477a97ad5977ad9fd2db5b 

*"Bowel Changes in MS"
 https://www.ms.org.au/attachments/bowel-handouts-merged-2015.aspx

*"What is a Neurogenic Bowel?"
 https://www.saintlukeskc.org/health-library/neurogenic-bowel

*"How to Treat a Fecal Impaction" 
https://www.medicalnewstoday.com/articles/322150

*“Controlling the Muscle Spasms of MS”
http://www.msviews.org/msviewsandnews4/index.php/2012-05-28-00-15-54/2012-05-28-00-18-16/632

*"How temperature affects people with Multiple Sclerosis"
http://brainblogger.com/2014/09/13/how-temperature-affects-people-with-multiple-sclerosis/

*"How to Boost Your Immune System"
http://bit.ly/19huu2H

*“The Power of Sleep”
http://time.com/3326565/the-power-of-sleep/

*The Complete Guide to Insomnia and How You an Manage It  **NEW**
https://howtosleep.co.uk/guides/the-complete-guide-to-insomnia
 For many people, the impact on sleep quality caused by COVID-19 and daily life disruptions may find help in this in-depth resource. (Note: sleeping   prescriptions are discouraged. However, they are often necessary as an interim, permanent, or last resort with MS/other chronic conditions.)

*Solutions for Cooling Every Body
http://www.polarproducts.com/polarshop/pc/home.asp

* Yoga positions (click here- PDF)

 

Other Resources

Americans with Disabilities Act/Legal/Employment

• ADA Guide:
  http://www.ada.gov/cguide.htm#anchor62335
  
  
• ADA & People with MS | Employment Issues
  http://bit.ly/1uBj60V
  
  
• Know Your Rights: A Legal Guide for People Living with Multiple Sclerosis
  http://www.nationalmssociety.org/Programs-and-Services/Resources/Know-Your-Rights-A-Legal-Guide-for-People-Living-w?page=1&orderby=3&order=asc 
  
  
• Disclosing MS On the Job: Why I Did, and Why I Didn’t  (11/17/2020)
  https://multiplesclerosis.net/living-with-ms/disclosing-job-work-reasons/ 
  Useful site: 
    Job Accommodation Network (JAN)
    https://askjan.org/
  
  
  

Associations: Multiple Sclerosis

• National Multiple Sclerosis Society (NMSS)
  www.nationalmssociety.org
  1-800-344-4867
   
• Multiple Sclerosis Association of America (MSAA)
  www.mymsaa.org
  1-(800) 532-7667
   
• Multiple Sclerosis Foundation (MSF)
  www.msfocus.org
  1- 888-MSFOCUS
   
• Multiple Sclerosis International Federation
  http://www.msif.org/en/
  
  
• The Consortium of Multiple Sclerosis Centers
  The leading educational and professional development organization for MS healthcare professionals.
  http://www.mscare.org/
   
• AIMS (Advances In Multiple Sclerosis)Created by the Consortium of Multiple Sclerosis Centers (CMSC), Nurse Practitioner Alternatives (NPA), and The France Foundation. Provides high-quality, up-to-date information on advances in the treatment of MS.
   www.cmeAIMS.org  
   
• iConquorMS - a Patient-Powered Research Network (PPRN)
  https://www.iconquerms.org/
  
  

• MSology is a free information service offering the latest research news on multiple sclerosis (MS), tips on living
  with the disease, and practical advice to help in making decisions.
  http://msology.ca/     

 

Associations: Other

• Myelin Repair Foundation
  info@myelinrepair.org
  http://www.myelinrepair.org
  Tel: 408-871-2410
  
• Caregiver Action Network – (Be heard. Get answers. Find support.)
  
  
• Well Spouse Association
  info@wellspouse.org
  http://www.wellspouse.org
  Tel: 800-838-0879 732-577-8899
   
• Caregiving Resource Center--Information, tools and tips for caregivers (AARP)
  http://bit.ly/1yFBnMV
  
  
• American Association on Health and Disability
  The mission of AAHD is to advance health promotion and wellness initiatives for children and adults with disabilities. AAHD accomplishes its mission through advocacy, education, public awareness, and research efforts at the federal, state, and community levels.
  http://www.aahd.us/ 

 

Business Ideas For People With Disabilities  

         *Helpful educational resources and/or business ideas for people with disabilities  

• https://www.commercialcapitaltraining.com/business-resources/business-ideas/business-ideas-people-disabilities/

 

Doctors: Background Check (Profiles, Credentials, Ratings, Reviews)

• www.healthgrades.com
• www.vitals.com

 

Healthcare/Insurance Information

• Agency for Healthcare Research & Quality: Patient & Consumer Services
  http://www.ahrq.gov/patients-consumers/index.htm
  

• Does Health Insurance Cover Multiple Sclerosis?

• Healthcare Coverage: FAQ’S
  https://www.healthcare.gov/all-topics/
    
• U.S. Department of Health and Human Services
  Affordable Care Act; Prevention/wellness; other HHS info
  http://www.hhs.gov/healthcare/index.html
   
• The Costs of MS Treatment
  http://www.everydayhealth.com/multiple-sclerosis/costs-of-ms-treatment.aspx
   
• “Evaluating Health Information—MedlinePlus”
  Lots of health information swirling around out there. How can you tell what's legit? Check out this resource for guidance.
  http://www.nlm.nih.gov/medlineplus/evaluatinghealthinformation.html

 

• Drugs.com provides accurate and independent information on more than 24,000 prescription drugs, over-the-counter medicines & natural products.
  https://www.drugs.com/
  
  
• Drug-Nutrient Interactions and Drug-Supplement Interactions | What You Need to Know
  http://bit.ly/1xdavm7
          www.drugwatch.com/health/
          www.drugwatch.com/drugs-and-devices/
  
  
• Medical Dictionary
  Descriptions of medical conditions, medications, anatomical terms, etc. are provided in this website.
  www.thefreedictionary.com (click “Medical Dictionary”)
   
• WebMD
  WebMD provides health information, tools for managing your health, and support to those who seek information. The content is timely and credible.
  www.webmd.com
   
• FDA List of vaccines 
  http://www.fda.gov/BiologicsBloodVaccines/Vaccines/ApprovedProducts/ucm093833.htm
  
  
• MS Research Update
  The 2020 edition is a comprehensive overview of research findings on the FDA-approved disease-modifying therapies, as well as many experimental treatments
  https://mymsaa.org/publications/msresearch-update-2020
  
  
• Drug-Nutrient Interactions and Drug-Supplement Interactions | What You Need to Know
  http://bit.ly/1xdavm7  

 

Social Security Disability Benefits/Medicare

To obtain information about Social Security Disability, you can call your local social security office, or go online at www.socialsecurity.gov.
Another very informative site for this subject is www.NMSS.org (Type “social security disability” in the search bar.)   

• Social Security Disability Benefits Guide       
  http://www.thesimpledollar.com/disability-benefits-guide/
  

• NEW! Social Security Disability Law Updates for the MS Community (Excellent Video)
  MS Views & News (July, 2021) Webinar-Steven Stepper, ESQ. Disability Attorney

• A Guide to Medicare Benefits
  https://www.caring.com/medicare/
  
  
• Social Security Disability Benefit Calculator       
  http://www.thesimpledollar.com/disability-benefits-guide/#social-security-disability-benefit-    calculator
  
  

Suicide Hotline

Call: 9-8-8  (NEW)
Easy Mental Health Crisis Helpline
 

The U.S. National Suicide Prevention Lifeline at 800-273-TALK (8255), is a free, 24/7 service that can provide suicidal          persons or those around them with support, information and resources. (Source: National Institute of Mental Health.)

 

Support

• MS Friends
  http://www.nationalmssociety.org/Resources-Support/Find-Support/Connect-with-Peers-One-on-One
   
• Call 2-1-1
  Similar to dialing 9-1-1 for emergencies, calling 2-1-1 helps people seeking training, employment, food pantries,
   
• Multiple Sclerosis Discovery Forum
  An online community and information portal that aims to inspire connections and clinical advances
  http://www.msdiscovery.org/ 
  
  

Treatments (DMT'S) 

• Disease Modifying Therapies (DMT's) and Other Medications
  https://www.nationalmssociety.org/Treating-MS/Medications#section-1  
       
• Stem Cells in MS
  https://www.nationalmssociety.org/Research/Research-News-Progress/Stem-Cells-in-MS
  
  
• MSAA’s website and publications offer information about stem cell therapy (SCT) for the experimental treatment of MS. Details on some of the newer studies on SCT are featured in the recent editions of MSAA’s MS Research Update, and may be found by going to the Publications section of MSAA’s website at https://mymsaa.org/ms-information/publications/, and scroll down to select one of the two most recent editions of the MS Research Update.
  
  
• DVC Stem offers cell infusion and other treatments for MS at their Medical Center in the Cayman Islands. Protocols are IRB approved, and the cells come from regulated, U.S. based, FDA compliant laboratories. Treatment consists of a two-day period including the IV transplant of 300M cord tissue-derived MSCs, as well as a variety of therapies designed to aid stem cell activation and potency (chiro, physiotherapy, acupuncture, lymphatic massage, etc).
  https://www.dvcstem.com/